Life As A Wolf

My name is Kim, I'm 23 years old and living with lupus. I was diagnosed in August 2009 and have spent the last year learning to deal with this chronic illness and its complications.

Example of most stereotypical lupus malar rash.

Example of most stereotypical lupus malar rash.

— 1 year ago with 1 note
#lupus  #malar rash 
My daily medicinal, vitamin and supplemental regimen, as of June 2010.

My daily medicinal, vitamin and supplemental regimen, as of June 2010.

— 1 year ago
#lupus  #medicine 
An example of an erupted granuloma caused by lupus pernio, seen here on my index finger. This is the only one that is currently bothering me. Hopefully it will be healed within the next week or two.

An example of an erupted granuloma caused by lupus pernio, seen here on my index finger. This is the only one that is currently bothering me. Hopefully it will be healed within the next week or two.

— 1 year ago with 1 note
An up-close look at the scars on my fingers, caused by lupus pernio.
“The most characteristic cutaneous lesion of sarcoidosis”, pernio skin lesions include “ulcers, nodules, and granuloma formation” (MedScape) that manifest as “large bluish-red and dusky purple infiltrated nodules and plaque-like lesions on [the] nose, cheeks, ears, fingers and toes” (DermNetNZ). 
I’m thankful that only my fingers have been affected, albeit every single one of them has at one point been ugly and painful; each home to a wound that takes weeks to heal, on average.
If I keep away the cigarette consumption, they will stay better for longer. But it is never a simple farewell for a vice such as this. I’m trying hard, though. Also, habits that I’ve made part of my daily routine have helped (washing hands in warm water only, keeping open sores covered up, putting medicine on them, taking medicine for them… and that doesn’t include any of the multitude of precautions that must be taken during winter months, when the cold does the worst work).

An up-close look at the scars on my fingers, caused by lupus pernio.

“The most characteristic cutaneous lesion of sarcoidosis”, pernio skin lesions include “ulcers, nodules, and granuloma formation” (MedScape) that manifest as “large bluish-red and dusky purple infiltrated nodules and plaque-like lesions on [the] nose, cheeks, ears, fingers and toes” (DermNetNZ). 

I’m thankful that only my fingers have been affected, albeit every single one of them has at one point been ugly and painful; each home to a wound that takes weeks to heal, on average.

If I keep away the cigarette consumption, they will stay better for longer. But it is never a simple farewell for a vice such as this. I’m trying hard, though. Also, habits that I’ve made part of my daily routine have helped (washing hands in warm water only, keeping open sores covered up, putting medicine on them, taking medicine for them… and that doesn’t include any of the multitude of precautions that must be taken during winter months, when the cold does the worst work).

— 1 year ago with 1 note
#lupus  #pernio  #sarcoidosis  #lupus pernio 
My face rash has emerged, yet again, across my cheeks and around my eyes. No clue what caused it this time… I think I had a weekend-long virus that somehow brought it on (and from which I’ve since recovered). Upped my Prednisone to see if that will help. Even if I wanted to get in to see my dermatologist, his next available appointment isn’t until the end of July. So I play the waiting game? Hrrm…

My face rash has emerged, yet again, across my cheeks and around my eyes. No clue what caused it this time… I think I had a weekend-long virus that somehow brought it on (and from which I’ve since recovered). Upped my Prednisone to see if that will help. Even if I wanted to get in to see my dermatologist, his next available appointment isn’t until the end of July. So I play the waiting game? Hrrm…

— 1 year ago
#lupus  #face rash 
Lupus was given its name by a 19th century French doctor who thought that the facial rash of some people with lupus looked like the bite or scratch of a wolf. “Lupus” is Latin for wolf and “erythematosus” is Latin for red (via Kid’s Health online).

Lupus was given its name by a 19th century French doctor who thought that the facial rash of some people with lupus looked like the bite or scratch of a wolf. “Lupus” is Latin for wolf and “erythematosus” is Latin for red (via Kid’s Health online).

— 1 year ago